Unclassified Fatty Acid Oxidation Disorder (U-FAOD) In Loving Memory of Kathleen Celeste Boiros October 24, 2002 – July 11, 2003. Lost to an Unclassified Fatty Acid Oxidation Disorder (U-FAOD). Kathleen Celeste Boiros was born on October 24th, 2002. She was born on her Auntie Eileen’s birthday and she was named after her great-aunt & mommy’s […]
Nora
Long-chain 3-hydroxyacyl-CoA dehydrogenase deficiency (LCHAD) This story is shared by a family who lost a child to LCHADD. Our four-month-old daughter died suddenly and unexpectedly. This did NOT have to happen. A simple newborn screening test, which most parents are not aware of, would have saved her life. Please take the time to read our […]
