Anne Rugari is the mother of three children, two of which who were born with Krabbe disease. Anne is a tireless advocate for Krabbe and believes that all children should be screened for all diseases that there is a newborn screening test for. Anne has been with Save Babies Through Screening Foundation for over 6 years. Anne serves on two other boards, KrabbeConnect and Partners For Krabbe Research.
Save Babies
Newborn screenings save babies, one foot at a time
Resources
FAQs – Pregnant Families
FAQs – Initial Positive Screens
FAQs – Bloodspots
Videos
Families with Diagnoses
Disorder Descriptions
For Practitioners
