National Newborn Screening and Genetics Resource Center (NNSGRC)

Provides information and resources in the area of newborn screening and genetics to benefit health professionals, the public health community, consumers and government officials. The NNSGRC is a cooperative agreement between the Maternal Child and Health Bureau (MCHB), Genetic Services Branch and the University of Texas Health Science Center at San Antonio (UTHSCSA), Department of Pediatrics.

Medline Plus Interactive Newborn Screening Tool

Provides information and tutorial guides on newborn screening.

Save Babies Through Screening Foundation U.K.

A non-profit making charitable organization run by volunteers. SBTS-UK’s mission is to improve and save the lives of children by working to prevent disabilities or early death resulting from diseases that are both detectable through newborn screening and treatable.

Learn more about newborn screening, which disorders are screened for in your state, and other frequently asked questions. More

Pregnant Families

Learn what it means when your baby initially screens positive for a disorder. What questions should you ask your doctor? What resources are available? More

Initial Positive Screens

Find support groups for and learn more about your baby’s disorder, learn about additional resources available to you and your family. More

Families with Diagnoses

Access Save Babies Through Screening Foundation's extensive links to resources available to support you, learn about screenable disorders. More


Newborn screening saves babies, one foot at a time.

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