Association of Public Health Laboratories

An organization that serves to protect the public from diseases and other hazards.

Everybody Has Something

A book for young readers written by the parent of a child with PKU.

Automatic news updates on topics related to newborn screening specifically and public health in general, and updated links to state by state lab websites.

Preserving the Future of Newborn Screening (PFNS)

PFNS is a coalition of parents, health care and public health professionals, corporations, and other individuals. PFNS strives to educate the public about the promise of research using blood spots left over from newborn screening.


SCID educational guide to assist parents who have received a positive screen from the Severe Combined Immune Deficiency (SCID) newborn screening test. To download a copy of the brochure, click here.

SCID educational guide to assist parents who learn that their child has been diagnosed with Severe Combined Immune Deficiency (SCID). To download a copy of the brochure, click here.

Learn more about newborn screening, which disorders are screened for in your state, and other frequently asked questions. More

Pregnant Families

Learn what it means when your baby initially screens positive for a disorder. What questions should you ask your doctor? What resources are available? More

Initial Positive Screens

Find support groups for and learn more about your baby’s disorder, learn about additional resources available to you and your family. More

Families with Diagnoses

Access Save Babies Through Screening Foundation's extensive links to resources available to support you, learn about screenable disorders. More


Newborn screening saves babies, one foot at a time.

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