Family Stories

These stories are written by families whose lives have been affected by newborn screening. The stories are in the families' own words and reflect both joy and grief, showing where there have been positive outcomes for babies screened, as well as negative outcomes for those who did not receive comprehensive screening. The Save Babies Through Screening Foundation is grateful to these families for sharing their experiences, and hopes the stories will help shed light on the overwhelming importance of newborn screening for every baby.

If you would like to share your own family's story, please contact us at

Learn more about newborn screening, which disorders are screened for in your state, and other frequently asked questions. More

Pregnant Families

Learn what it means when your baby initially screens positive for a disorder. What questions should you ask your doctor? What resources are available? More

Initial Positive Screens

Find support groups for and learn more about your baby’s disorder, learn about additional resources available to you and your family. More

Families with Diagnoses

Access Save Babies Through Screening Foundation's extensive links to resources available to support you, learn about screenable disorders. More


Newborn screening saves babies, one foot at a time.

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