Unity Quilt Travels in California
Early in 2004, six of the Unity Quilt panels were loaned to California's Newborn Screening Area Service Center based at Children's Hospital Central California. The panels were displayed at 3 conferences during their stay in the sunny state. To read more about the quilt's travels in California click here
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Parents of Galactosemic Children Conference ~ Sparks, Nevada
Save Babies Through Screening had a booth at the PGC Conference in July 2003. The booth was being run by Michelle Fowler, where the quilt panels were prominently displayed on the 11th & 12th.
Pella Public Library, Iowa
Twelve quilts were showcased above the circulation desk & in display cases - you couldn't get in the library without noticing them. On display with the panels was a Des Moines Register article and personal articles on several affected children. Thanks to Linda Glendening who maked this showing possible. The panels were scheduled to be on display until the end of May 2003, but stayed over for a while longer.
Early Intervention Conference - "Innovation and Best Practice for Tomorrow" in Hattiesburg, MS.
Ben Haygood's quilt panel was displayed at two conferences in March. On March 19 & 20, Ben’s panel was displayed for the second time. The panel was displayed at the Mississippi Early Intervention Conference entitled, "Innovation and Best Practice for Tomorrow", in Hattiesburg, MS.
Mississippi Child Health Conference – "Growing Up Healthy" in Philadelphia, MS.
Ben Haygood’s quilt panel was displayed for the first time in March from the 3rd to the 5th at the Mississippi Child Health Conference--"Growing Up Healthy" in Philadelphia, MS. The conference addressed children's health issues to healthcare providers and professionals within the state.
An estimated 600 professionals throughout Mississippi and the surrounding southern states were reached by the two conferences above. Among these professionals were teachers, education administrators, therapists, nurses, social workers, mental health professionals, and other health professionals.
Wisconsin Department of Health
Mitchell Shultz's quilt panel was on display on Feb 28, 2003 at the Wisconsin Department of Health to honor the fact that the department added 5 more disorders to their newborn screening panel.
American Academy of Pediatrics Conference in San Francisco
The panel featuring Ben Haygood was displayed at the American Academy of Pediatrics Conference in San Francisco, October 20-22, 2001.
Quilt Panel Displayed at Pediatrics Conference. (Description contributed by Amy Seirer.)
A panel from the Newborn Screening Unity Quilt was displayed at the American Academy of Pediatrics conference in San Francisco, October 20-22, 2001. The panel, featuring Ben Haygood’s story—a little boy who was lost to MCAD, was displayed in the NewScreen: Expanded Newborn Screening booth to promote awareness about the importance of comprehensive newborn screening. The quilt panel was successful in giving a face to the so-called rare disorders that are not included in many state-mandated screening programs. “For many doctors, reading Ben’s story gave them a new perspective about newborn screening,” says Neeta Patel, a representative from NewScreen who attended the show. “Doctors were touched by his story.”
The conference attracted nearly 6,000 attendees and also featured an expanded newborn screening talk by Dr. Ed McCabe, professor and executive chair at the UCLA Department of Pediatrics. Dr. McCabe mentioned “Ben’s Bill,” Mississippi legislation spearheaded by Vince and Robin Haygood that requires patient education about comprehensive newborn screening.
National Society of Genetic Counselor’s 20th Annual Education Conference WADC
The Medium Chain Acyl-CoA Dehydrogenase Deficiency (MCAD) quilt panel honoring, Ben Haygood, was on display during the National Society of Genetic Counselor’s 20th Annual Education Conference held in Washington, DC from November 4-7, 2001. Click here to read NBS Unity Quilt Panel makes a trip to Washington DC.
First Unveiling of Unity Quilt in Celebration of NBS Awareness Month
The Unity Quilt was unveiled at Virtua Hospital in Voorhees, New Jersey on Sept 4, 2001 where it was displayed in the lobby through the month of October. Virtua Hospital was the first hospital system (note system, not first hospital) in New Jersey to offer supplemental newborn screening.
Early in 2004, six of the Unity Quilt panels were loaned to California's Newborn Screening Area Service Center based at Children's Hospital Central California. The panels were displayed at 3 conferences during their stay in the sunny state. To read more about the quilt's travels in California click here
.
Parents of Galactosemic Children Conference ~ Sparks, Nevada
Save Babies Through Screening had a booth at the PGC Conference in July 2003. The booth was being run by Michelle Fowler, where the quilt panels were prominently displayed on the 11th & 12th.
Pella Public Library, Iowa
Twelve quilts were showcased above the circulation desk & in display cases - you couldn't get in the library without noticing them. On display with the panels was a Des Moines Register article and personal articles on several affected children. Thanks to Linda Glendening who maked this showing possible. The panels were scheduled to be on display until the end of May 2003, but stayed over for a while longer.
Early Intervention Conference - "Innovation and Best Practice for Tomorrow" in Hattiesburg, MS.
Ben Haygood's quilt panel was displayed at two conferences in March. On March 19 & 20, Ben’s panel was displayed for the second time. The panel was displayed at the Mississippi Early Intervention Conference entitled, "Innovation and Best Practice for Tomorrow", in Hattiesburg, MS.
Mississippi Child Health Conference – "Growing Up Healthy" in Philadelphia, MS.
Ben Haygood’s quilt panel was displayed for the first time in March from the 3rd to the 5th at the Mississippi Child Health Conference--"Growing Up Healthy" in Philadelphia, MS. The conference addressed children's health issues to healthcare providers and professionals within the state.
An estimated 600 professionals throughout Mississippi and the surrounding southern states were reached by the two conferences above. Among these professionals were teachers, education administrators, therapists, nurses, social workers, mental health professionals, and other health professionals.
Wisconsin Department of Health
Mitchell Shultz's quilt panel was on display on Feb 28, 2003 at the Wisconsin Department of Health to honor the fact that the department added 5 more disorders to their newborn screening panel.
American Academy of Pediatrics Conference in San Francisco
The panel featuring Ben Haygood was displayed at the American Academy of Pediatrics Conference in San Francisco, October 20-22, 2001.
Quilt Panel Displayed at Pediatrics Conference. (Description contributed by Amy Seirer.)
A panel from the Newborn Screening Unity Quilt was displayed at the American Academy of Pediatrics conference in San Francisco, October 20-22, 2001. The panel, featuring Ben Haygood’s story—a little boy who was lost to MCAD, was displayed in the NewScreen: Expanded Newborn Screening booth to promote awareness about the importance of comprehensive newborn screening. The quilt panel was successful in giving a face to the so-called rare disorders that are not included in many state-mandated screening programs. “For many doctors, reading Ben’s story gave them a new perspective about newborn screening,” says Neeta Patel, a representative from NewScreen who attended the show. “Doctors were touched by his story.”
The conference attracted nearly 6,000 attendees and also featured an expanded newborn screening talk by Dr. Ed McCabe, professor and executive chair at the UCLA Department of Pediatrics. Dr. McCabe mentioned “Ben’s Bill,” Mississippi legislation spearheaded by Vince and Robin Haygood that requires patient education about comprehensive newborn screening.
National Society of Genetic Counselor’s 20th Annual Education Conference WADC
The Medium Chain Acyl-CoA Dehydrogenase Deficiency (MCAD) quilt panel honoring, Ben Haygood, was on display during the National Society of Genetic Counselor’s 20th Annual Education Conference held in Washington, DC from November 4-7, 2001. Click here to read NBS Unity Quilt Panel makes a trip to Washington DC.
First Unveiling of Unity Quilt in Celebration of NBS Awareness Month
The Unity Quilt was unveiled at Virtua Hospital in Voorhees, New Jersey on Sept 4, 2001 where it was displayed in the lobby through the month of October. Virtua Hospital was the first hospital system (note system, not first hospital) in New Jersey to offer supplemental newborn screening.
Here are a few ideas for constructing your panel:
Photos: Photos can be easily used in the panel design by printing them onto iron-on transfers. This can be done using your personal computer and color printer. You can iron the transfer onto a separate piece of fabric and then attach the piece of fabric on the panel.
Paint: You may choose to paint items on the panel. You may use textile paint, colorfast dye, or indelible ink pens. You can also use sponges to apply the paint. Another idea is to use stencils to paint the designs on the panel. Please don't use "puffy" paint as it remains sticky even after drying and may smudge or stick together when folded.
Appliqué: You may choose to sew fabric, letters and small mementos onto the background fabric. Please do not use glue to attach these items, as it will not endure the frequent folding and unfolding of the Quilt.
Collage: You can place almost any type of item on the panel; however, please make sure that the materials you use won't tear the fabric and will remain in place when the Quilt is transported. Please avoid using glass and sequins, as they will tear the fabric over time. Bulky items should also be avoided.
Photos: Photos can be easily used in the panel design by printing them onto iron-on transfers. This can be done using your personal computer and color printer. You can iron the transfer onto a separate piece of fabric and then attach the piece of fabric on the panel.
Paint: You may choose to paint items on the panel. You may use textile paint, colorfast dye, or indelible ink pens. You can also use sponges to apply the paint. Another idea is to use stencils to paint the designs on the panel. Please don't use "puffy" paint as it remains sticky even after drying and may smudge or stick together when folded.
Appliqué: You may choose to sew fabric, letters and small mementos onto the background fabric. Please do not use glue to attach these items, as it will not endure the frequent folding and unfolding of the Quilt.
Collage: You can place almost any type of item on the panel; however, please make sure that the materials you use won't tear the fabric and will remain in place when the Quilt is transported. Please avoid using glass and sequins, as they will tear the fabric over time. Bulky items should also be avoided.
Participation is open to all families with children--and to individuals--who have disorders detectable through newborn screening.
© 2008 Save Babies Through Screening Foundation. All rights reserved.
The Save Babies Through Screening Foundation is a not-for-profit organization recognized as tax-exempt under Internal Revenue Code section 501(c)(3).
Our mission is to improve the lives of children by working to prevent death and disabilities resulting from disorders detectable through newborn screening tests.
The Save Babies Through Screening Foundation is a not-for-profit organization recognized as tax-exempt under Internal Revenue Code section 501(c)(3).
Our mission is to improve the lives of children by working to prevent death and disabilities resulting from disorders detectable through newborn screening tests.
Save Babies Through Screening Foundation, Inc.
P. O. Box 42197 • Cincinnati, Oh 45242
Toll Free: 1-888-454-3383
P. O. Box 42197 • Cincinnati, Oh 45242
Toll Free: 1-888-454-3383
The Newborn Screening Unity Quilt
A Celebration of Rarity
The Newborn Screening Unity Quilt allows families to celebrate and share the lives of their children who were born with disorders detectable through newborn screening. The NBS Unity Quilt celebrates the lives of all affected individuals, including those spared and lost. The mission of the NBS Unity Quilt is to create a visual testimony of the most compelling symbol of newborn screening - the children touched by it.
NBS Quilt Panels
Please click on the pictures to see a larger image of our quilt panels!
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NBS Quilt Information
For more information about the Newborn Screening Unity Quilt project, or if you are interested in hosting a display, contact the NBS Unity Quilt Manager or call toll free 1-888-454-3383. Printable NBS Unity Quilt Information Guide (pdf file)
How to Participate in the NBS Unity Quilt Project
Creating a Panel
* Include the name of the person being honored or remembered
* Include the person’s disorder name (abbreviations acceptable)
* Include the person’s date of birth and death (if applicable)
* Include the person’s hometown
Please create only one panel per person. If you would like, you may include all the affected children (siblings) of one family on the same panel.
* Include the person’s disorder name (abbreviations acceptable)
* Include the person’s date of birth and death (if applicable)
* Include the person’s hometown
Please create only one panel per person. If you would like, you may include all the affected children (siblings) of one family on the same panel.
Panel Specifics
Durability of each panel is crucial since the Quilt will be folded, unfolded and transported all over the country many times. It is recommended that glue not be used on the panels, since it deteriorates with time. It is requested that all items attached to the panels be solidly sewn in place. Please use a medium-weight, non-stretch fabric to create your panel.
Size
Panels should be created to be placed horizontally (long ways) on the completed NBS Unity Quilt. The finished (hemmed) length of your panel should be 3 feet high by 6 feet wide (90 cm x 180 cm)--no more and no less—in size. The panel edges should be hemmed. If you are unable to hem the edges, please send the panel, anyway—we will hem the edges when necessary. IMPORTANT: When you cut your fabric for the panel, remember to leave an extra 2-3 inches on each side for the hem. It is not necessary to place batting inside the panels. However, a backing is recommended to help keep the panels clean when they are displayed across the flooring or ground.
Design Ideas
How to Keep the Program Going
Save Babies Through Screening Foundation depends on the support of the families who submit panels for the Quilt to keep the project going. Costs to create, transport, repair and maintain the Quilt will continuously occur. If you are able, please make a donation to the project to help cover the ongoing expense. A minimum donation of $25.00 per panel is requested to help with these costs; however, all submitted panels will be included in the Quilt, with or without a donation.
Any amount is appreciated and will be used solely for this project. All donations should be made payable to the Save Babies Through Screening Foundation. Please write “quilt” in the memo line of the check or money order so that your contribution will be designated for this project.
Any amount is appreciated and will be used solely for this project. All donations should be made payable to the Save Babies Through Screening Foundation. Please write “quilt” in the memo line of the check or money order so that your contribution will be designated for this project.
Personal Story
Please include a one-page letter/story about the person you are celebrating along with your panel. If possible, please also include a photo of the celebrated person along with the letter. These will be kept at our offices and displayed along with the Quilt from time to time.
Submission Form
A panel submission form must be included with all Quilt panels. This form provides vital information we need about you and your panel. Panels without a submission form cannot be included in the Quilt. Please remember to fill out the submission form and include it with your panel. Printable NBS Unity Quilt Information Guide and Submission Form (pdf file)
If you are unable to download the form, please request the form by writing to NBS Unity Quilt Form. Include your full name and mailing address, and we will send you a form in the regular mail.
If you are unable to download the form, please request the form by writing to NBS Unity Quilt Form. Include your full name and mailing address, and we will send you a form in the regular mail.
Where to Send the Panel
Finished panels should be sent to:
Kelly Peters, Quilt Manager
22440 Hwy M
Weston, MO 64098
Kelly Peters, Quilt Manager
22440 Hwy M
Weston, MO 64098
Protect Your Panel
Please send your panel via registered mail or with a courier service, such as UPS, FedEx or Airborne Express, so that you can track the package and ensure its delivery. Be sure to include a completed panel submission form with your panel.
What Happens Next
Once a completed panel arrives at our office, it will be examined for durability, and all your information will be logged into our Quilt database. If required, all adjustments, repairs, and/or reinforcements will occur at this time. Then each panel will be numbered and logged appropriately.
Display Schedule
The NBS Unity Quilt is a heartfelt tool in the fight for proper Newborn Screening. If you would like the Quilt displayed in your community, please contact us as directed below. The Quilt can be displayed across the United States in medical schools, hospitals, newborn screening laboratories, libraries, businesses, corporate offices and other forums touched by newborn screening. Past displays and the upcoming display schedule are available for viewing.
The NBS Unity Quilt panels will also be displayed in various locations each year during the month of September. September has been declared as Newborn Screening Awareness Month.
The NBS Unity Quilt panels will also be displayed in various locations each year during the month of September. September has been declared as Newborn Screening Awareness Month.
Past Viewings
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