© 2008 Save Babies Through Screening Foundation. All rights reserved.
The Save Babies Through Screening Foundation is a not-for-profit organization recognized as tax-exempt under Internal Revenue Code section 501(c)(3).
Our mission is to improve the lives of children by working to prevent death and disabilities resulting from disorders detectable through newborn screening tests.
Save Babies Through Screening Foundation, Inc.
P. O. Box 42197 • Cincinnati, Oh 45242
Toll Free: 1-888-454-3383
Newborn Screening Awareness Month
September is national Newborn Screening Awareness month. In order to bring a national spotlight to newborn screening and its detectable diseases, Save Babies Through Screening Foundation, along with several partner organizations, declared the month of September as National Newborn Screening Awareness Month . It has been celebrated every September since the year 2000.
During September, across the United States, Canada and the United Kingdom, Foundation advocates make a special effort to reach out to expectant families to let them know what newborn screening (NBS) is, and what they can do to ensure that their newborn is screened comprehensively and successfully. Awareness and knowledge is key to helping affected children live a normal, healthy life, which they may not have otherwise.
Our advocates reach out to media outlets to ask that they lend a hand in putting newborn screening education into the hands of those that need it most: the over 4 million families who are expecting babies this year. This year SBTS will be holding a press conference that will include speakers from the Foundation’s Board of Directors, physicians whose mission is to help the children affected by these diseases, and television star, Scott Baio, who will speak of his personal newborn screening experience with his daughter, Bailey.
Media interested in covering a newborn screening related story and/or event can contact the Foundation President, Jill Levy-Fisch at jill@savebabies.org or by phone at (914) 588-1127.
National NBS Awareness Month offers the opportunity to further inform the public of newborn screening which can prevent the serious complications of undiagnosed underlying disorders in children. The goal is to raise the awareness of NBS to the general public by continuous, ongoing education about newborn screening.
What You Can Do!
As we have often said, your personal stories – whether you are an affected individual, a family member or a friend – provide a unique perspective and are often the most effective tools in getting the public's attention. Be sure to contact your local media outlets to encourage them to run stories on newborn screening. For tips on giving interviews with the media, download our Tell the Media Pamphlet. If you still need more info on how to approach these phone calls, you can contact us toll-free at 1-888-454-3383..
Additionally, we have a new Public Service Announcement that includes ‘Happy Days’, ‘Charles in Charge’ and VH1 reality star, Scott Baio and his family, speaking about their recent experience with newborn screening after the birth of their daughter, Bailey, earlier this year. To order a copy of the PSA, please send an email to email@savebabies.org
NBS Lapel Pins
Newborn screening pins are available. They are red, white and gold and feature the DNA symbol, a few drops of blood, and the letters “NBS” for newborn screening. Price is $3.00.
To order, send payment, indicate “pins”, and include your mailing address! Send check or money order to the address below. If paying by credit card, send credit card # and expiration date to maryjanerd@aol.com. You may also order online through PayPal by sending payment to paypal@savebabies.org or by clicking the PayPal Button below.
NBS Awareness Wristbands
You can also “wear your awareness” with NBS Awareness wristbands. These turquoise bands come in 2 sizes (adult and child) for $2.00 each which includes all shipping and handling charges. If you would like to order pins and/or wristbands, please send check or money order to the address listed below. You may also order online through PayPal by sending payment to paypal@savebabies.org.
You may also phone or fax in your order for faster delivery at the numbers below.
Wear Your Awareness