We need your help. Families, adults with Inborn Errors of Metabolism, and medical professionals have come together in an incredibly energetic and focused manner this past year to work on creating federal legislation to mandate that insurance companies provide coverage for medical foods and supplements (i.e. formula and low protein foods). Our efforts are beginning to pay off with a proposed bill called the Medical Foods Equity Act of 2009 through the leadership of Senator Kerry’s office. We now need to help Senator Kerry’s office by finding co-sponsors for this groundbreaking legislation. Senator Kerry will be introducing the Medical Foods Equity Act very soon, which is based on recommendations from the HHS Advisory Committee on Heritable Disorders in Newborns and Children You can view updates and information on the bill by visiting www.thomas.gov and searching for bill number S2766.
Please call your Senators TODAY and ask for their leadership on this bill by agreeing to become a co-sponsor. Calls are much more effective than emails in this situation! If you decide to call, please ask to speak with your Senator’s Health Liaison. If the Senator needs more information or has additional questions, please direct them to Megan Thompson in Senator Kerry’s office. CLICK HERE for a list of the Senators’ contact information. I also attach other information that will be helpful when you make the calls. Thank you so much for your help as we move forward in ensuring that all of our loved ones have access and coverage for their medical foods and supplements, no matter where they live in our country.
The following documents are available to provide information pertaining to the Medical Foods legislation to provide guidance and background information for you while contacting your senators:
Cost and State Coverage Charts
HHS Medical Foods Recommendations
Medical Foods Equity Act Endorsing Organizations
Medical Foods Equity Act of 2009 legislation outline
Medical Foods Equity Act Letter from Senator John Kerry
URGENT ACTION NEEDED!
© 2008 Save Babies Through Screening Foundation. All rights reserved.
The Save Babies Through Screening Foundation is a not-for-profit organization recognized as tax-exempt under Internal Revenue Code section 501(c)(3).
Our mission is to improve the lives of children by working to prevent death and disabilities resulting from disorders detectable through newborn screening tests.
Save Babies Through Screening Foundation, Inc.
P. O. Box 42197 • Cincinnati, Oh 45242
Toll Free: 1-888-454-3383
