The 26th meeting of the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC)

January 26-27, 2011
Park Hyatt Washington Hotel, Washington, DC

Website


The Newborn Screening Translational Network (NBSTRN) has developed a centralized, web-based dried blood spot (DBS) virtual repository. The system represents information about the stored samples in participating states in a consistent and virtual manner to allow researchers to browse and query the DBS universe. The virtual repository provides NBSTRN members with the tools to review and manage sample requests, configure approved orders, track shipments, and view researcher responses to the samples they have received. To promote the Virtual Repository of Dried Blood Spots (VRDBS), the NBSTRN will be hosting one hour monthly training sessions which will cover a variety of topics and provide time after the demonstration for questions. Please visit our website to see a complete list of webinars. While each webinar is geared toward an intended audience, anyone is welcome to join the webinar to learn more about VRDBS.

January 19, 2012, 2:00 PM ET
Topics:
* About the Virtual Repository
* How to Use This Site
* Research Support
Investigator: State Administrator

Registration

Learn more about newborn screening, which disorders are screened for in your state, and other frequently asked questions. More

Pregnant Families

Learn what it means when your baby initially screens positive for a disorder. What questions should you ask your doctor? What resources are available? More

Initial Positive Screens

Find support groups for and learn more about your baby’s disorder, learn about additional resources available to you and your family. More

Families with Diagnoses

Access Save Babies Through Screening Foundation's extensive links to resources available to support you, learn about screenable disorders. More

Practitioners

Newborn screening saves babies, one foot at a time.

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